In the Kingdom of the Sick: A Social History of Chronic Illness in America

By Laurie Edwards

Thirty years in the past, Susan Sontag famously wrote, "Everyone who's born holds twin citizenship, within the country of the good and the dominion of the unwell . . . eventually every one folks is obliged, not less than for a spell, to spot ourselves as electorate of that different place." greater than 133 million americans now dwell with persistent ailment, accounting for almost 3 quarters of all healthiness care cash and untold soreness, incapacity, and heartbreak. sufferers with illnesses as different as HIV, melanoma, or style 2 diabetes were stigmatized, accused of inflicting their preventable health problems via their way of life offerings. individuals with irritable bowel syndrome and feminine sufferers with power fatigue syndrome were informed their signs have been as a result of nervousness; and hundreds of thousands of individuals with power ache have confronted skepticism from physicians and the general public alike. What The Noonday Demon did for individuals being affected by melancholy, Laurie Edwards does in the event you are chronically ailing, championing their reason and giving voice to their lament.

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295. three. Ibid. , 296. four. Ibid. five. Sidell, “Adult Adjustment to continual Illness,” 6. 6. Joffe, “Is This Duo possible? ” 7. Sidell, “Adult Adjustment to power Illness,” 2. eight. Elliott, greater than good, forty four. nine. Nakazawa, The Autoimmune Epidemic, 24. 10. Ibid. , 36. eleven. Ibid. , 38. 12. facilities for ailment keep watch over and Prevention, “Chronic affliction Overview,” www. cdc. gov/chronicdisease/overview/index. htm. thirteen. Ibid. 14. Rao, “Looking again and looking out Forward,” fighting power ailment. 15. Rothman, Strangers on the Bedside, 51–53. sixteen. Sontag, sickness as Metaphor, 64–65. 17. nationwide Institutes of future health, “The 1971 nationwide melanoma Act: funding within the Future,” www. nih. gov/news/pr/mar97/nci-26c. htm. 18. Rothman, Strangers on the Bedside, 1. 19. Ibid. , sixteen. 20. Ibid. , 30. 21. Ibid. , 15. 22. Ibid. 23. Ibid. , one hundred forty four. 24. NPR, “Remembering the Tuskegee Experiment,” www. npr. org/programs/morning/features/2002/jul/tuskegee/. 25. facilities for affliction regulate and Prevention, “The Tusekegee Timeline,” www. cdc. gov/tuskegee/timeline. htm. 26. NPR, “Remembering the Tuskegee scan. ” 27. Skloot, The Immortal lifetime of Henrietta Lacks, four. 28. Rothman, Strangers on the Bedside, three. 29. nationwide Institutes of wellbeing and fitness, “Timeline of Laws,” http://history. nih. gov/about/timelines_laws_human. html#1949. 30. Rothman, Strangers on the Bedside, one hundred fifty five. 31. Lepore, “The Politics of Death,” sixty four. 32. nationwide Hospice and Palliative Care association, “NHPCO evidence and Figures,” five. 33. lengthy, “June eleven, 1985: Karen Ann Quinlan Dies,” www. stressed out. com/science/discoveries/news/2008/06/dayintech_0611. 34. Lepore, “The Politics of Death,” sixty six. 35. facilities for Medicare and Medicaid companies, “Tracing the historical past of CMS Programs,” 1. 36. Ibid. , 3–4. 37. Daaleman, “Reorganizing Medicare. ” 38. facilities for Medicare and Medicaid prone, “Tracing the historical past of CMS Programs,” five. 39. Rothman, Strangers on the Bedside, eleven. bankruptcy three: incapacity RIGHTS, CIVIL RIGHTS, and persistent disorder 1. Wendell, “Unhealthy Disabled,” 19. 2. Ibid. , 21. three. Ibid. , 25. four. Goffman, Stigma: Notes at the administration of Spoiled id, four. five. incapacity Rights and self reliant dwelling stream, “Introduction,” http://bancroft. berkeley. edu/collections/drilm/introduction. html. 6. King, purple Ribbons, Inc. , 106. 7. Quigley, “Hospitals and the Civil Rights Act of 1964,” 455. eight. Ibid. , 457. nine. Hoffman, “Health Care Reform and Social Movements,” eighty. 10. incapacity Rights and self sufficient residing circulation, “Timeline,” http://bancroft. berkeley. edu/collections/drilm/resources/timeline. html. eleven. Barnartt and Scotch, incapacity Protests, 18. 12. Rothman, Stranger on the Bedside, 205. thirteen. incapacity Rights and self sufficient dwelling circulate, “Timeline. ” 14. Minnesota Statewide autonomous residing Council, “A Chronology of the incapacity Rights Movements,” www. mnsilc. org/chronology. htm. 15. NPR, “A glance again At ‘Section 504,’” www. npr. org/programs/wesun/features/2002/504/. sixteen. incapacity Rights and autonomous residing flow, “Timeline. ” 17. Ibid. 18. Wendell, “Unhealthy Disabled,” 31. 19. Ibid. 20. incapacity Rights and self reliant dwelling circulate, “Timeline.

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